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Have questions about RISE? Wondering if you should participate in this electronic patient data reporting system? Read our FAQs for details about general RISE information, RISE for health care providers, and RISE for researchers. If you still have any questions, please contact us at RISE@rheumatology.org.
RISE is available to currently practicing rheumatologists and rheumatology health professionals and is free to ACR/ARP members.
ACR provides oversight and monitoring of the registry and its information integrity with assistance from the registry technology vendor, FIGmd.
RISE compiles information from both the Electronic Health Record (EHR) and the Practice Management (PM) system that is collected during routine clinical care and entered into EHRs, including demographic data, medications, laboratory studies, and more.
Yes. The RISE registry infrastructure is HIPAA compliant. The ACR will not have access to a patient's protected health information (PHI). Only the registry vendor and the practice itself will have access to the PHI data, which can only be used for registry operations, such as reporting on quality measures to the Centers for Medicare & Medicaid Services (CMS), or as needed/requested by participating practices. Any data used by the ACR or third parties for research or other purposes will be an aggregated limited data set with no direct patient identifiers.
The ACR does not charge practices to join the RISE registry, however some EHRs charge practices for patient data to be brought over into the registry. Please check with your EHR to see if they would charge your practice to connect with the registry.
In order to participate in the registry, providers/practices must:
The Western IRB reviewed RISE and determined that, because RISE is a quality improvement registry focused on healthcare delivery and on measuring and reporting data for clinical, practical or administrative uses, individual practices do not need IRB approval or patient consent to use RISE. However, you should check with your organization or institution to determine if you are required to get independent approval or exemption from your local IRB.
The RISE registry will be the only registry you need for quality reporting and quality improvement for rheumatology. There are a handful of RISE QCDR rheumatology-specific measures that are only available in the RISE registry that you can track your performances on. However, RISE practices are more than welcome to participate in additional registries.
Typically, practices spend a total of 6-10 hours over several months to prepare for and successfully incorporate the RISE registry. The ACR requires continuous engagement with the practices for us to ensure the data being brought over into the registry is mapped accurately.
Yes. All sites that participate in the RISE registry will be trained during the deployment process.
Yes. ACR staff and FIGmd will work together to provide resources and guidance on how to report for MIPS through the registry.
There is no cost for practices who are gathering EHR and Practice Management data for RISE.
Within your practice, each provider will only be able to see RISE data on his/her patients and the practice's overall benchmarks. The practice administrator is the only person who will be able to see RISE data for all providers in the practice.
When RISE is used for federal reporting, RISE data, including PHI, will be encrypted and securely shared with CMS, as required by federal regulations.
When RISE data is used for research purposes, it is aggregated and scrubbed of patient identifiers before even being analyzed. All results are also aggregated and de-identified to ensure that investigators do not have access to PHI.
Yes, the ACR is happy to have a practice (most likely one who uses the same EHR as you do) reach out to you to discuss their experience with the RISE registry.
We're happy to answer any other questions you may have. To learn more about using RISE in your practice, please contact us at RISE@rheumatology.org.
Yes. The ACR has a process through which investigators can request analyses of data from the RISE registry. Details on requesting data can be found on the Requesting RISE Data page.
An overview of the data request process is laid out on the Requesting RISE Data page.
You only need IRB approval for your proposed project if it is required by your organization. The ACR has received the necessary approvals and exemptions from the Western IRB for the procedures for collecting the data and using it for research purposes Additionally, each data analytic center (DAC) has received IRB approval from their local institutions to conduct analyses of the data as requested. However, researchers may be required to have their proposed projects independently approved or exempted by their local IRBs.
No. Currently, the ACR does not release limited datasets to individual investigators or organizations. Instead, it contracts with data analytic centers (DACs) that have both the expertise and technical infrastructure to analyze complex, large electronic health record-based datasets.
RISE extracts all EHR information collected by rheumatology professionals during routine clinical practice, which includes a wide range of rheumatic diseases. If you would like to see examples of the data routinely captured, send your request to RISE@rheumatology.org.
No. RISE automatically extracts all data input into the EHR systems of participating practices, so there is no list of pre-defined data elements to pull. If you would like to see examples of the data routinely captured, send your request to RISE@rheumatology.org.
No. Because the RISE registry works by digitally pulling information from electronic health records, the ACR does not collect or request biologic samples.
Because RISE data can be used for a wide variety of rheumatology research projects, costs are assessed on a case-by-case basis and are determined by the project complexity and the level of involvement required from the assigned data analytic center that will perform the actual analysis. Based on previous projects, the cost for research projects can vary widely from tens of thousands of dollars for basic queries to hundreds of thousands of dollars for publication-worthy analyses. Please contact RISE@rheumatology.org if you would like to discuss your project idea with RISE staff and better understand the impact your analytical needs have on your project budget.
Researchers who plan to apply for grant funding should be aware of the following important information:
We're happy to answer any other questions you may have. To learn more about accessing RISE data for research purposes, read through the RISE Data User Guide or please send an email to RISE@rheumatology.org.