RISE for Research

Make Discoveries with RISE

Make Discoveries with RISE
With automatically extracted data from electronic health records (EHR), research using RISE data can advance our understanding of the natural history, outcomes, and treatment of rheumatic disease.

Submit your data request today to access:

 Inclusive and comprehensive rheumatology patient data
 Treatment pathways and outcomes analysis
 Opportunities for innovative research

Submit your Request 

The ACR has set up a process for researchers to request analyses of RISE data. Learn about the process to request RISE data.

Request Data Use

Unique Benefits of RISE as a Source of Patient Data for Research

Rheumatology-Specific Data: RISE is the first and largest EHR-enabled rheumatology registry. With ACR curated Qualified Clinical Data Registry measures, RISE has gained broad use among rheumatology providers. These specialty-specific measures are targeted to help improve quality of care and are reportable for the Merit-based Incentive Payment System. See the measures for performance year 2020.

Broad, Diverse Patient Population: RISE is not dependent on a case report form, instead it automatically extracts data on the entire population of patients at participating practices. This innovative registry includes patients with all medical conditions seen by a rheumatologist and all insurance types. RISE patient data include details on patient demographics, such as age, sex and geography, and on clinical characteristics, such as diagnoses, medications, and outcomes.

Rare Disease Diagnoses: Although osteoarthritis and rheumatoid arthritis are the most common diagnoses, the registry includes all diseases seen by rheumatologists, such as psoriatic arthritis or systemic lupus erythematosus and includes patients with many rare diseases, including granulomatosis with polyangiitis, microscopic polyangiitis, Behçet's syndrome, Takayasu’s arteritis, inflammatory myopathies, and more.

Fresh, Credible Data: Since RISE patient data comes directly from EHRs, it provides a robust source of patient information. These data are more up-to-date than data from administrative claims or chart reviews, which often have significant delays in aggregating results.

To learn more about RISE and the variety of data it collects, read this Arthritis Care & Research article from the RISE Research & Publications Subcommittee.

View approved RISE research projects

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