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The ACR will begin accepting requests to use RISE data in 2017. The following is provided for information purposes only. If you have any questions, contact us at RISE@rheumatology.org.
The process to request the use of RISE data is straightforward. Below is a chart with an overview of how it works.
The ACR is not currently accepting requests to use RISE data. Please check back again in 2017.
All RISE data use requests will be reviewed by ACR staff and the ACR’s RISE Research & Publications Subcommittee. The process varies slightly based on whether or not the request is intended for publication. Once your request is received, it will go through the following process:
If you are interested in using RISE data as part of a grant, your request MUST be approved by the subcommittee BEFORE the grant application is submitted.
Datasets are not shared directly with individual investigators or organizations. Instead, data analysis will be handled by one of three data analytic centers with special expertise in large dataset analyses: Duke Clinical Research Institute, University of Alabama at Birmingham, and University of California at San Francisco. All approved requests will be assigned to one of the centers. The ACR, requestor and assigned center will work collaboratively to refine and conduct the analysis. Once complete, the results will be transferred to the requestor.
If the requestor plans to publish the results, the following disclaimer must be included on all abstracts, manuscripts and presentations that make use of RISE registry data:
“This research was supported by the American College of Rheumatology’s RISE registry. The views expressed in this manuscript represent those of the author(s) and do not necessarily represent the official views of the American College of Rheumatology.”
To access RISE data, there will be an annual subscription fee in addition to a per-project fee to conduct the requested analysis. The per-project fee will vary based on the complexity of the request.
In an effort to make the registry accessible to all, the annual subscription fee may be waived if the requestor meets the following criteria:
Important Note: If you are interested in using RISE data as part of a non-ACR grant, your request MUST be approved by the subcommittee BEFORE the grant application is submitted. For more information, see the “Review of Data Use Requests” section.
Get more information on the use of RISE data for research.
See Frequently Asked Questions >
If you are a private company interested in using RISE data, contact Amy Beith Miller at ABeithMiller@rheumatology.org