RISE for Research

Beyond serving as a unique tool to help improve patient care, the RISE Registry is a valuable source of information for those interested in discovering ways to better care for rheumatology patients.

The ACR is accepting requests for projects using RISE data. Visit the Requesting RISE Data page to submit your request.

Opportunities for RISE Data

Make Discoveries

Because RISE automatically extracts data from electronic health records (EHR), research using RISE data can advance our understanding of the natural history, outcomes, and treatment of rheumatic disease.

Demonstrate Value of Rheumatology

Data from the RISE Registry will enable the development, testing, and rapid implementation of novel measures to define “value” in rheumatology. This is critically important as payers, particularly Medicare, increasingly tie payments to value assessments.

Benefits of Using RISE Data

The RISE Registry offers unique benefits as a source of patient data for research:

  • Broad, Diverse Patient Population: By automatically uploading a rheumatologist’s entire population of patients, including up to a year prior to initial RISE implementation, the registry includes patients with all medical conditions and all types of insurance. RISE patient data include details on patient demographics, such as age, insurance status and geography, and on clinical characteristics, such as diagnoses, medications, and certain outcomes.
  • Wide Range of Diseases: Although osteoarthritis and rheumatoid arthritis (RA) are the most common diagnoses, the registry includes all diseases seen by rheumatologists, such as psoriatic arthritis, Sjögren’s syndrome, systemic lupus erythematosus (lupus), dermatomyositis, temporal arteritis, granulomatosis with polyangiitis, microscopic polyangitis, Behcet’s syndrome, Takayasu’s arteritis, and inflammatory myopathies.
  • Fresh, Credible Data: Since RISE patient data comes from EHRs, it provides a robust source of patient information. These data are more up-to-date than data from administrative claims or chart reviews, which often have significant delays in aggregating results.

To learn more about RISE and the variety of data it collects, read a publication in Arthritis Care & Research from the ACR’s RISE Research & Publications Subcommittee.

Requesting RISE Data

The ACR has set up a process through which researchers interested in using RISE data for their work can request use of the data. See details >

Learn more about research that is being done using RISE data.